Update on Daniel from Laura

Daniel got his PICC Line out on Wed. March 5. He had a seizure right there in the doctors office after she pulled it out. Daniel had three seizures on this day and the third seizure was so bad at 8:00 p.m. at night that I gave Daniel his Diastat (rectal valium) to stop the seizure. Daniel has good days and bad days. I count it all as a blessing from God because Daniel is such a beautiful gift from God. Daniel's heart is so pure, Daniel is fearfully and wonderfully made by God.

I am truly blessed that we have had so many people praying for little Daniel and our family. Everyone's prayers have helped to sustain us and have given us so much hope and encouragement to know that we have so many brothers and sisters in Christ Jesus praying for us.

It is only by the grace of God that any of us can get through it all whatever it is that each one of us is going through.

As my dear prayer warrior sister in Christ (Jerri Phillips) said after she left her doctors office pertaining to her heart condition: "and I left his office with the smell of dust and rubble in my nose." "Jericho was down".

Hugs to all my brothers and sisters in Christ Jesus.

Laura

Mini Daniel Update

I called to talk to Laura tonight and one of her older boys answered the phone and said she couldn't come to the phone now because Daniel pulled at his PICC line and the home health nurse was there checking out the situation. Please keep them in your prayers.

This morning in church Laura testified to God's goodness and praised the Lord that Daniel had three days with no seizures.

Daniel Update and Video

Laura has been taking care of Daniel and his PICC line from home since the 21st, but I'm sure it seems much longer to Laura who manages his care and his PICC line three times a day. Each time she does an infusion of his antibiotics the process takes an hour - it's a full time job for Laura. Of course Mark and their other sons help as well. Below is some video of the PICC line process.
*Note* Music will play for about two minutes before the video starts.


Daniel continues to have seizures on a regular basis up to three to four times a week. Laura gives him Valium if he has a grand mal for five minutes as soon as the medication is administered the seizure stops. They will see the surgeon on Thursday to check the incision and make the infection is clearing up adequately. Laura is planning also to meet with Daniel's neurologist to discuss other medical options.

Daniel is talking more. He continuously says, "Your welcome, bye bye have a good night." Laura laughed when she told me and said that he is repeating what the Walmart clerk says when they leave.

Please continue to pray for Mark, Laura, Daniel and the whole family as they continue Daniel's treatment at home.

Daniel is Home!

Daniel was discharged from the hospital yesterday (Thursday) afternoon. Laura had a three hour meeting with the home health nurse yesterday as he went through all of the initial information and trained her how to care for the PICC line and administer Daniel's antibiotic. Laura has to give Daniel his IV antibiotics every eight hours.

Its been a long month for Laura and the whole family. Please continue to pray for them. Pray that Laura is able to get the rest that she needs so she can continue caring for her family and pray God's will in the whole situation!

Thank you so much to all who have shared their love, concern and prayers with this amazing family!

Daniel has his PICC Line

I spoke with Laura a while ago and she said that Daniel got his PICC line with no complications and he is playing happily now. Laura will be instructed on the use and care of the PICC line and hopefully they will all be home tomorrow. A home health nurse will meet them at home and give more direction. The doctors said that Laura's quick identification of the area on his head that is infected kept him from getting a bone infection and/or a brain infection.

Daniel is getting a PICC Line

I just spoke with Mark and Laura and they said that Daniel has to get a PICC line (Peripherally Inserted Central Catheter) tomorrow morning at 9am. They are going to put him under anesthesia to place it. For those of you who are not familiar with a PICC line - it is a flexible tube designed to provide direct access to the bloodstream and can be used for many medical procedures. Daniel will be in the hospital until Thursday or Friday. They anticipate that Daniel will need IV antibiotics from home for about two weeks. A home health nurse will instruct Laura on how to administer the antibiotics and flush his line with Heparin to make sure there are no clots in the line. The medical team is insisting on IV antibiotics to ensure that Daniel doesn't get a brain infection or any kind of infection in the bone.

Please continue praying for Mark, Laura, Daniel and the rest of the family.